Published: Thu, July 20, 2017
IT | By Jonathon Greene

Charlie Gard amendment passed House committee, awaiting floor vote

Charlie Gard amendment passed House committee, awaiting floor vote

"We just passed amendment that grants permanent resident status to #CharlieGard and family so Charlie can get the medical treatment he needs", Fortenberry wrote.

Gard and his family have been at the center of an global debate over whether governments can make life and death decisions for individuals.

The decision over whether or not to allow him to leave the United Kingdom has yet to be made by British courts.

Charlie being granted U.S. citizenship could mean his parents Connie Yates and Chris Gard, in their 30s, no longer need permission from doctors at Great Ormond Street to take him across the Atlantic for treatment, according to MailOnline. He also said he is "following with affection and sadness the case of little Charlie Gard and expresses his closeness to his parents". "The hospital feels certain that they have done all that they have for Charlie out of love and because they could not have done anything less even if they had wanted to". The couple raised money to bring their son to the United States for Hirano's experimental treatment, although a court order prohibited Hirano from being revealed as the doctor until last week.

Charlie's parents also released a photo this week that shows him appearing to look at a toy; the hospital says the boy is blind and can not move.

This comes ahead of further court hearings expected at the end of this week, and a ruling on Charlie's future care next week. Nucleoside therapy is a therapy, not a cure, for Charlie's condition, mitochondrial DNA depletion syndrome, and would not save Gard's life long-term in either instance.

A US doctor and neurology professor at Columbia University, Michio Hirano, has offered to treat Charlie.

"He's our son. He's our flesh and blood, so it should be our right as parents to decide to give him a chance at life", Charlie's mom said. "We are not bad parents, we are there for him all the time, we are completely devoted to him and he's not in pain and suffering, and I promise everyone I would not sit there and watch my son in pain and suffering, I couldn't do it".

An American neurosurgeon who offered to treat Charlie is due to be among specialists gathering at the hospital.

Charlie's mother, Connie Yates, is also attending, alongside an independent chairman. Like Charlie, doctors had told his parents there was little chance of survival.

Dr Michio Hirano is developing an experimental therapy used on at least one American patients with a less severe form of the disease.

While this all seems like a big solution to an nearly global issue at this point, much of the decision is still in the air, as is Charlie's life.

The case gained a great deal of global attention after Pope Francis and President Donald Trump offered their support to 11-month-old Charlie.

She said: "Our gorgeous baby boy is still stable". His parents have been fighting a legal battle to send him to the US for experimental therapy.

Like this: